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  • DISCUS ELECTRONIC DATA COLLECTION FOR CLINICAL MANAGEMENT AND RESEARCH

    Discus is a server-based software written in Oracle specifically designed for clinical management, data collection and research in sickle cell disease.

    Menu driven screens ensure complete data collection and on-line editing procedures make available all haematological and biochemical results for patient management, Finally, all clinical complications receive 2 digit codes for easy recall in clinical research. This is the second generation of the Patient Management System (PMS) evolved by the MRC Laboratories and invaluable in clinics managing 5,500 patients.


    Hematology

    Hematological indices displayed sequentially are downloaded from hematology analyzers. Data from other methods (eg HbA2, HbF, reticulocytes, serum iron values) may be added manually. Computer derived indices include MCHC, MCH, age and other information including spleen size and clinical codes are relayed from clinical screens. Steady state hematological indices are derived according to programs selecting all steady state values over age 5 years. Serial values tabulated and readily available for management and research. A rapid graphing facility is available.
    Graphing option displays serial values visibly. This graph shows evolution of hemoglobin levels over 23 years.

    Clinical Examination

    Prior Status review screen prompts question on presence of leg ulcers. Selection of ‘yes’ produces leg ulcer documentation screen below. Clinical Review screen enquires of events since last seen and also current status. Prior status enquires on enuresis, leg ulceration, priapism, pubertal development including menarche and last menstrual period. Programs detect intervals >30 days and alert to amenorrhoea. Basic clinical information includes temperature, liver & spleen size, chest, cardiovascular and ENT findings.

    Growth

    Height & weight may be inserted in metric or Imperial units and are automatically converted. Z-scores are computed against internal standards for growth among Jamaican SS children but alternative standards may be loaded. Growth for height or weight may be plotted against median, 25th and 75 centiles for standards.

    Bone Pain

    Bone pain screen allows recording of precipitating factors, duration and severity of pain and any previous treatments. Pain distribution options include ‘pain all over’ or localized pain when detailed pain distribution may be indicated on a sub-screen by selecting the appropriate cursor and placing on site of pain. Underlying digitization of the body image converts pain sites to text as shown below avoiding clerical errors such as confusion of right and left. Similar documentation is possible for sites of swelling.

    Leg Ulcers

    Ulcer site can be indicated by cursor which will generate text indicating position. Selection of Code Ulcer Details prompts screen below which documents configuration, colour, size, status and provides a text box for additional details

    Images

    Cross referencing to stored image files allows display of clinical images within DISCUS
    Image screens allow storage of clinical images, Xrays, ultrasound examinations. Gall bladder ultrasound showing biliary sludge and 2 gallstones
    Cross referencing to stored image files allows display of clinical images within DISCUS

    Examples of Coding System

    2 digits: one letter representing system involved; one number giving options. The number 0 represents a condition awaiting final diagnosis.

    A Anaemia B Bone pain/infection

    A0 Unexplained hypoplasia
    A1 Aplastic crisis (also V8 if B19 confirmed)
    A2 Acute splenic sequestration
    A3 Chronic hypersplenism
    A4 Megaloblastic change
    A5 Iron deficiency
    A6 Haemorrhage
    A7 Acute malaria
    A8 Anaemia secondary to other infection
    A9 unused

    B0 Bone pain pending diagnosis
    B1 Bone pain crisis, severe
    B2 Bone pain crisis, mild
    B3 Bone pain of ribs or sternum
    B4 Dactylitis
    B5 Avascular necrosis of femoral head
    B6 Avascular necrosis of other bones
    B7 Osteomyelitis, suspected
    B9 Osteomyelitis, other
    B8 Osteomyelitis, Salmonella

    G General anaesthesia for surgery S Skin problems

    G1 Splenectomy
    G2 Cholecystectomy
    G3 Tonsillectomy/adenoidectomy
    G4 Gastro-duodenal procedures
    G5 Appendicectomy
    G6 Other abdominal surgery
    G7 D&C
    G8 Caesarean section
    G9 Other gynaecological procedure

    S0 Leg ulcer present (duration but < 3m)
    S1 Leg ulcer healing within 3m
    S2 Chronic leg ulceration >3m
    S3 Skin trauma
    S4 Ankle fixation (equinus deformity)
    S5 Cellulitis
    S6 Abscess
    S7 Impetigo/skin sepsis
    S8 Rash, undiagnosed
    S9 Thrush

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